WP4 explores how metastatic breast cancer affects patients and their families, focusing on the everyday challenges they face and the support systems currently available. This work package goes beyond clinical outcomes by examining the psychosocial impact of monitoring processes—such as scans, waiting times, and medical consultations—on daily life.
To achieve this, WP4 uses questionnaires, family interviews, and co-design workshops to integrate patient and family perspectives into the monitoring process. Special attention is given to factors like fear of progression, emotional distress, resilience, health literacy, and family health dynamics. Drawing on Family Systems Theory, WP4 aims to co-design and test a stepped-care model that delivers tailored support for both patients and families.
By amplifying lived experiences, WP4 ensures that monitoring does more than detect disease progression—it strengthens communication, improves coping strategies, and enhances quality of life for patients and their families.